Wednesday, October 28, 2009


Hey Reader!

Don't forget to listen to me on the radio today on US 103.5 FM. You can listen and watch a live video of me by clicking on All Children's Hospital Telethon 2009. I'll be on at 11AMish today!

Make a donation if you can too please!
Love, Miss E.

Monday, October 26, 2009

Cute Smile and a Nice Back-Side

Dear Reader,

I have been the busy bee of late. Since I have been having more energy I have been doing more and more. I've been riding along in the car every chance I get too.

Brother had a friend sleep over on Friday night. His friend is on his soccer team and they had a game Saturday. This is the cutest of Brother's friends. He has a such a sweet smile. Everyone loves his smile, it'll light up any room. He is just so cute! Brother's friend is on a swim team and apparently is quite good. I have decided to name him after a smiling swimmer that can light up a room. If you are a Disney fan, you might recognize the Angler Fish from the movie "Finding Nemo".

Anyway, Brother and Angler actually won their first soccer game last Saturday! Hooray! They have been such losers for so long and they finally won a game. So, we are all very happy about that.

The weather was so beautiful on Saturday that we decided to burn our big ol' pile of wood that we had been waiting to burn. Mom doesn't like to start fires when Dad is not home because she has set our field on fire too many times. I've learned from past experiences that when a field catches fire it is good to have at least three able people present. One to run and get buckets water (that would be Brother), one to run over from his chickens to the fire to do some kind of fire dance on top of it (Daddy), and one to run around in small circles near the fire with her hands in the air and yell repeatedly, "FIRE!!! FIRE! THERE'S A FIRE!" (that would be Mommy).

Our fire was so hard to get going. We thought it would never start, when all of a sudden there was a WHOOSH! and the fire shot out of the ground just like when they send a shuttle into space on TV. The "WHOOSH!" stayed for quite a while and got EXTREMELY hot. When it died down a whole lot, Brother went and took a picture with his phone to send to his friend who loves bon-fires to "rub it in his face". I had posted it up on here, but then I accidentally clicked on "Remove Formatting From This Section" and poof it was gone. When I went back to get the chip, I discovered that the chair had eaten it. We tried everything we could to get it to cough it back up, but all it coughed up were straight pins. So we are going to wait until it poops it out.

The fire was quite fun. I walked up and down the hill in our back yard and I really felt it on Sunday. I'm really out of shape.

Sunday everyone went to church, except me of course. I think everyone really liked it. We hadn't been in so long. I got up a while after Mom, Brother, and Dad got home. I was tired from the fire the night before I guess.Once I had got dressed and ready to go, Mom, Dad and I went car shopping. We were looking to buy a Honda Accord or Toyota Camry to replace Dad's old car.

We didn't buy a new car for Dad that Sunday. We went to two car dealerships, but he has his heart set on a Honda Accord exactly like his old one except not smooshed. He's never owned anything else car wise, and he LOVES them. Dad is a really tough customer, the first car sales had to get the manager pretty early on and still couldn't take it. He ended up walking away. I thought he was going to cry, the poor dear. The second one was a really nice, sweet, easy to trust car dealer from Bangladesh trying to sell Dad a Toyota Camry. He told us how the Camrys are as nice as the Accord but better because of the "Nice, comfy, roomy back-side." He was really cute, and he never looked like he was going to cry. He was a great sales man. I probably would have bought the car he was trying to sell.

Today I woke up quite late, at noon. I don't know why I've been sleeping so late, but I hope I get over it soon. We picked up Brother and got a snack and then went to my uncle's doctor's office to get our flu shots.I was super nervous about getting my flu shot. So, so nervous. I kept thinking about the Swain Princess though and how she got her flu shot and it didn't hurt her at all. I was saying her name over and over in my head. It's crazy that I was this anxious about a little shot, all I've done and gone through, but I'm not used to anyone but me giving me shots. My own mother hasn't given me shots since I was 10 except for when I was diabetic and needed my daily insulin and I felt so terrible that I asked her to do it, and at that point I didn't care. Someone could have cut off my big toe with a light saber and I wouldn't have cared. Anyway, I insisted that Mom and Brother go first, and then I went. The nurse was super good! I didn't feel a thing, hurt less than a bug bite. I love flu shots!

Dad wasn't with us at the time so we took a shot to go for him. Dad was home when we got home and I said, "Hey Daddy! Do you want to play nurse and patient?"

Dad told me to wait until Mom got the camera. After I was all done he told me that I did a great job, that his chicken bites hurt more than that, and he now has evidence against me for malpractice.

Dr. Miss Ellaneous

PP Thank you to my #2 Fans for sending me the adapter so I could put all these pictures up!

Wednesday, October 21, 2009

Football, Fabulousness, and Geese, Hawks, and Deer

Dear Reader,

Yesterday was really fun, I did a whole bunch! I'll tell you all about it, but I'm going to update you on the previous days first.

On Sunday we watched football. Dad has come to enjoy football very much. He's becoming more American all the time. During one of the games he was watching over the weekend he cheered on the player saying "SAACK! SAAACK!" with the "a" really strained out. I knew why, and I had to smile. He's really working on saying "sack" because last year we were all watching football together when Dad yells out, "SUCK HIM! SUCK HIM! SUCK HHHHIIIMMM!!!!!!!" I was 14 and Rio had either just turned 13 or was going to soon. We all, Mom included, just looked at him with our eyes popped out. Then shortly after we all burst into laughter. We've teased him about it so much and told so many people the story since then that I doubt he'll ever do it again. Its a good memory for my memoirs.

On Monday Brother had soccer practice. I think this is his last day that it is on Monday, next week he'll have practices on Tuesdays and Thursdays again. I brought Piggy with for her training. There was a whole bunch of people at the park, but Piggy did really good. She got to see her first little kids. A dad, big nice looking guy, came up to me with his little girl, who came up to his thigh in height, and said, "Can she pet your dog? She loves puppies." The little girl was all shy, hiding behind her daddy's leg, and so cute with fine long light brown wavy hair. I'm thinking, "Puppy? This girl is nuts!" However I say, "Sure! My dog would love that!"

I gave Piggy the go-ahead and she goes to the girl and as the girl is petting her she lifts her nose and sniffs the girl's face. Their noses are at the same level. I never realized how big Piggy really is. The last time she was weighed, she was 107lbs but I didn't really think of her as that big. When she steps on my feet I get huge bruises, but I thought that was mostly my fault. The girl just kept on petting her and loving on her, she had such a cute smile, and the Dad keeps saying, "She just loves puppies." I keep thinking that they are a bit bonkers because my dog is like 3 times the size of that kid and so not a "puppy". It was all good though. The girl followed Pig and me around the whole time she was there and became very chatty in no time and kept telling me how much she "loves puppies". Pig, the girl, and I bumped into some other kids and Pig did wonderful with everyone she met. I'm quite proud of her.

Tuesday, yesterday, was a very fun day (as I have previously stated), I got to do a lot. It was a clinic day and a meeting day. I'm on the family advisory counsel at the hospital I go to. I'm the youngest member. I was only 13 when I joined. There are currently only two patients on the counsel, and they only let me be on there because I'm a super genius mastermind and I'm totally awesome and fabulous. I'm still trying to figure out why they picked the other patient to be on the counsel, not to be mean or anything though. The other patient is very quiet during the meetings, and she's 18 now. Her mother talks all the time! Everyone on the counsel raises their hands and waits their turn to talk except her mother. Her mom likes to tell stories, and some of them are kind of personal to her daughter. I was so stunned that her daughter let her tell those things to a whole room full of people when she first did it! I'm a bit more used to it now though.

Anyway, first was clinic. Our appointment was at 3ish. Agent 99 wasn't there, so Agent 100 (the boss nurse) got the privilege of sticking me. This time she didn't trip on anything or make any comments about being blind. Though I might not have heard her if she did. CatWoman was visiting us when I got stuck.

CatWoman is the media lady for the hospital, she is awesome. She has her nickname for her love of cats and her paralyzed-cat-like reflexes. We chatted with CatWoman for as long as we could and examined her newer bruises and wounds she had. She has a large newly acquired burn from frying fish (cats have a thing for fish you know) and another new bruise that she doesn't know the origin of. CatWoman came to invite me to be on the All Children's Hospital Radiothon. I do enjoy doing these type of things very much! We got the okay from Patch (my doctor) and I am scheduled to be on the radio at 11AM next Wednesday, the 28th, on US 103.5FM. For you computer no-nothings, you can click on US 103.5FM and it will take you to the station's website where you can click "listen live" in the top left corner of the page and listen to the station live.

After clinic we went to CatWoman's building to get my picture taken by Marshmallow. Marshmallow is so named because he is a marshmallow. He is the moving picture man for the hospital and he is a mushy marshmallow guy. I've seen him crying behind the camera before, and he cries during the telethon every year, and he's just a marshmallow. He's a lovable one though.

Marshmallow was all excited about taking my picture. He is learning to be a still picture man instead of just a moving picture man. Peter Pan is teaching him. Peter Pan is the still picture man, and he's also a cartoonist, music writer, music player, and what ever else he wants to be. He grew up around the hospital because his dad was some big kahuna, and everyone that has been with the hospital for a long time treats him like their little boy nephew. He's always happy and joyful and having lots of fun. He's forever a boy, which is why he is named Peter Pan. Unfortunately I didn't get to see much of Peter Pan this visit because he "had something" but he did bounce (okay, he really walked, but it always seems bouncy when he does it) into the room once on accident and ruffled my gorgeous curls.

Marshmallow took tons of pictures of me, kept saying over and over that's he's not a good photographer, and Peter Pan is better, and "I don't know what I'm doing." He would say it like this though, "You're beautimus! I don't even know what I'm doing and you look great!" That's what he kept saying most of all, "Beautimus! You're just beautimus!" I think he had learned a new word since I had seen him last.

While Marshmallow was taking pictures of me, Mom and CatWoman went over the script that she had written up for me. I'm part of the production team for the bone marrow transplant discharge DVD that we are working on. I'm "the star" of the DVD, or at least that is the way it is planned to be right now. You never know things may change. I hope that these things don't though because that would be really inconvenient for CatWoman as she is writing the script to fit me.

Anyway, after pictures and what not we went to the meeting. None of the vending machines were working and they didn't have any food that I could eat that I liked in the cafeteria, so Walski went into the kitchens and got me some Doritos. I can't tell why Walski has her nickname, because in doing so I would probably have to expose her true identity.

We were all excited about this meeting because we were having new members attending. Some of these new members were Mother and Father Goose, also known to you, Reader, as my #2 fans. The meeting went okay, we discussed some new projects that we will be working on that I'm quite excited about, I'll let you know about them as they unflold.

After the meeting we got to talk to Mother and Father Goose for quite a bit, and I also talked to Sargent Sweetness. Sargent Sweetness is the boss lady of the family advisory counsel. She is really super sweet, you meet her and you want to bake something for her, but she is someone that you would never want to cross or make upset. Pure sweetness with a cup of sargent mixed in, maybe a bit like your grandma.

Mother and Father Goose live near where Brother's next soccer game is going to take place, so they might bring the Swain Princess and the Silly Goose to go watch his game this Saturday. I think Brother is actually a bit excited about this.

HawkMom, the head parent of the family advisory counsel, wasn't there today. Her son was sick. This was quite bummish because I really love to visit with her and I really wanted to introduce her to my #2 fans. There will be other meetings though, so maybe next time.

After the meeting and all of our lovely chatting, we left for the long ride home. We can get home in about an hour and a half if the road has no body else on it as it did last night. On the way home I saw something really cool! It was a doe, a deer, a female deer! It was actually two darling deers. It was very exciting, we sped by them on the toll road at 60 or 70mph, but I did see them. They were very close to the road too.

Today I have not done anything very constructive, and I have a lot of work to do and I feel quite a bit unaccomplished. So, I am going to ground myself for a bit. Usually I can get a lot of work done in decent time when I get in "the zone", so I probably won't stay grounded long but, if you don't hear from me it is because I'm doing very important things.

Thank you for your prayers and comments if you leave them,
Miss E.
PS Patch called my mom during the meeting and gave the verdict on my blood. My platelets and creatinine (kidney function) have not changed too much. My sodium was low and potassium was high, Patch thinks something might be up with the steroid I am on, but I'll let you know more about that when I do.

Saturday, October 17, 2009

Clinic Update and Dad's Wreck

Dear Reader,

I feel like I've been quite the busy bee since I've last written!

Thursday was a clinic day. Mom and I got up early and left long before we needed to. We did this so we could sneak into the Target during the morning hours when nobody would be there. There is no Target near where we live but there are a few on the way to clinic. We were going to buy shelves for my room.

Sneaking into the Target was a lot more fun than sneaking into the Lowes! The Target has a lot of cute clothes, a whole lot! It is also decorated for Halloween, plus there was a Starbucks and the place smelled of coffee. There was hardly anyone there.

We went to get my shelves first and they had lots of cute storage stuff. It was awesome, we got my shelves and some colorful bins to go in them. We looked at other stuff and it was just so fun! It was like going to an amusement park except quieter with air conditioning.

After we looked at the shelves we looked at the women's clothes. They had lots of really cute stuff that I liked. I wanted to buy it until I saw the price, practically $18 for a shirt! Holy Moly! No way I was paying for that! The shirt is cute, but it's just clothes, and once my money is spent it is gone forever. I'm saving that money for something better. If I need clothes I'll shop at a thrift store, or a consignment shop, or wear someones' hand-me-downs. If I dress awful enough people might just give me clothes because they won't be able to stand looking at me anymore, that's happened before....

Anyway, we didn't buy any clothes and we took the shelves to the cashier to check out. Our cashier guy was wearing his Target shirt like all the other employees and he had his collar buttons undone so you could see his chest hair. He talked like he was trying to sound like a girl. I know people think I'm a bit strange when I'm walking around in my mask, but I don't think I'm the strangest out there.

After we were done with our trespassing into Target, we went to clinic. My darling Aunty Alien came to visit me! It was so nice getting to visit with her. She told us stories of how awful and bratty her kids are, her disgusting medical issues, and what ever else popped into her head. I always enjoy visiting with her. We had a lovely time!

Aunty Alien stayed pretty much the whole appointment. Agent 99 (my clinic nurse) came in, accessed me, and hooked me up to my IVIG and Patch (my doctor) came and checked me up. My platelets had dropped a bit and were in the 90's, not too fabulous but, not anything to worry about. My creatinine had also dropped a little bit, and we were all happy with that. It was down to 2.4, so it went down a tiny smidge. That means my kidney function is a bit better than it was last week.

Shortly after Aunty Alien left I went to sleep. I was very tired from my pre-med for my IVIG. I woke up to find my mother on the phone with my dad. My dad is a physical therapist and does home care. Dad had gotten into a car accident and was in an ambulance on his way to the hospital. After Mom hung up, she told met that Dad said his chest hurt a bit from the air bag but he thought he would be fine. Dad had pulled off the road to avoid hitting a car who had stopped in front of him and the person behind him slammed into him and made him hit a tree.

On the way home from clinic we picked up Dad from the hospital parking lot. He was walking a bit like he was hurt, which is really unusual for Dad because he is so macho. He is a man and nothing can hurt him. So, Mom and I were a bit worried about him.

Dad was a bit upset because he had just gotten something in his car fixed that had cost quite a bit of money, he had just filled it up with gas, and now his precious was totalled. Two years ago, in 2007, Dad got in two car accidents in October in less than one week. None of these accidents were his fault. He thinks October is just an unlucky month for him. When he had gotten this car two years ago, he got a good deal on it and he was so proud of it and he loved it. Now it is dead. Poor Daddy.

We brought my dad home and we went to Brother's soccer scrimmage that he had been talking about for the past two weeks. It was against another competitive team and the opposing team members had been talking trash to each other ever since the scrimmage was arranged. Brother's team got squished.

The boys in our house had a rough day Thursday.

Friday, was a half day and Sleeping Beauty (my cousin who sleeps a lot and is beautiful) came home with brother. I didn't really talk much to her because I had to do homework for Rosetta Stone (my home bound teacher) who was coming over later in the day. I was really tired on Friday. I slept until like 11 o'clock.

Today is Saturday and I didn't do much today either. I finished the bud-bud (say the "u" like the "oo" in book) and I gave Baby and Piggy a bath with Mom. Bud-bud is sweet sticky rice wrapped in a banana leaf. It is a Philippine food, it is very yummy.

Now I am at home and Mom, Dad, and Brother are at the neighbor's house. I couldn't go because someone with a slight cold was over there earlier today. I get to have a girls night in with Baby, Piggy and Pineapple!

Have a great weekend!
Miss E.
PS: Go Gators!

Tuesday, October 13, 2009

Dairy Queen, Driving Lesson, and More

Dear Reader,

I'm sorry I haven't written in a while. Loads has happened too! Well, for me anyway... For people who are not confined to their home, then probably not so much has happened. These are my memoirs though, not theirs, and I say that loads has happened. I'll tell you about all the exciting happenings.

Last Friday we did something pretty exciting. After we picked up Brother from school we decided to go to Dairy Queen. Brother was very thirsty and I asked if he could please have a Moo-Late for me. I can't have one. I'm not allowed to eat any restaurant food because it is too germy and it is not on the low-microbial diet. So off to Dairy Queen we went!

It was our first time going to Dairy Queen since before my transplant, so about 2 years. It was quite exciting. We were waiting in line. Piggy and Brother were in the middle seats in the van, and Baby, Mommy and Me were in the front. As we get closer to the window, Mom can see inside the restaurant where the menu is posted. She starts to read every item that Diary Queen serves, "Hot-Dog, Chili-Dog, Cheese-Dog, Hamburger, Cheeseburger, Chicken Wrap, Chicken Sandwich, French French Fries, Cheese Fries..." on and on. So finally I burst out with an "Aaahhhugghhh!" ultra dramatically, complete with closing of the eyes and bending toward the dashboard. In doing this, I cause the fellow humans in the car to burst with laughter. Mom apologizes, claiming she "Didn't realize." Her apologizes were soo believable once I was able to hear them through her laughter.

Anyway, Mom and Brother got Carmel Moo-Lates and Baby and Piggy got "Puppy Cups". I got to watch, and that was about it for our visit to the Diary Queen.

The next exciting thing happened on Sunday. See, Saturday Brother and Mom went to the flea market for breakfast. Mom has been a bit hooked on flea markets since Dad took her there for a mega romantic breakfast date 2 weeks ago. So, she went with Brother there on Saturday and there was a humane society adopting out puppies. Mom and Brother got to hold the cutest puppies and thought and talked about puppies for the rest of the day. I love puppies. Mom took a picture of the puppy she thought was the cutest so I could see. Anyway, since then Brother had been wanting to bring his dog back in the house. She had been living outside because Brother doesn't keep her clean enough to be an inside dog. Mom told him as long as she was clean and he kept her clean (meaning a bath every week or more) she could come in.

Brother slept the rest of Saturday and didn't get to bring her in that day. However, Sunday at the crack of early morning I hear Brother calling his dog in the house. He had gotten up early and given her a bath so he could bring her in. So, Sunday was the day Brother's dog moved in the house.

I have assigned the code-name "Pineapple" to Brother's dog. Brother's dog is a very mean looking dog. She's very strong and built tough. She is DEFINITELY part Rottweiler. When brother plays with her, she can make her mouth foam if she wants. She has the ability to make any trespasser wet themselves, even though she's only ever bitten someone and drawn blood once. She is the sweetest dog though, very loving and so gentle. Pineapple is the second most gentle dog we have next to Piggy and that is coming from a biased person. Pineapple gets her name because pineapples look mean and hurtful on the outside, but on the inside they are purely sweet goodness.

So that is what happened Sunday! Brother was really nice and sweet and smiley all day Sunday and most of Monday. I think he really likes having his Pineapple in the house. She loves him too, she follows him everywhere, and waits for him if he closes a door on her. She has to know where he is all the time. She's a good dog for him.

Monday I got up early! Brother and Pineapple were up early (Pineapple is still getting used to the house schedule) and Piggy heard them and woke me up. So I was up at 6am. I decided to go with to drop Brother at school. After Mom dropped Brother, she had to go do some errands. One of which was to go to Lowe's and look at some shelving for my room. When she got inside, she called me on the phone and said, "Miss E. there's not many people in here. Do you want to come in?" I'm kind of unsure of the idea, but I do want to come in, so I say, "Ummm. Sure."

I grabbed my mask and I walked to the doors. I put it on and I went in. I felt kind of like I was breaking a law. My eyes were darting all around, trying to take in everything. I think Mom's eyes were darting around too, but I think she was on the look out for people catching her performing her criminal act. I saw the pumpkins for Halloween, and the ghosts too. They had Christmas trees, lights, and those big blow-up things for your yard. There were grills and cans of things, and a bunch of pretty new yellow and green John Deeres. Mom also made sure to point out the pressure washers to me, as that is what she really wants for her birthday.

We found the shelves very fast, and also found this really cute polka-dotted trash can. We bought the trash can and nothing else. I was able to walk all the way to the back of the store and back up to the cash register and I didn't get exhausted. I thought that was pretty cool!

When we got back to the van, we went to the next errand which was Wal*Mart. Mom wanted to sneak me in there too. She loves to break rules, and once she gets started she's hard to stop. I expressed to her that it probably wasn't a good idea though, and I stayed in the car and took a nap.

Pretty soon I'll be driving to all these places. I have finished my driver's ed course and am really looking forward to my birthday. It is less than a month away now! Getting my driving permit is on my mind very often and I think it is on Mom's too, because Monday she decided to give me a lesson in "what not to do while driving".

Brother had his soccer practice switched from Tuesday to Monday this week, and I think it is going to be that way next week too. I didn't train Piggy that day like I usually do, but I went with Mom to drop him off. On the way home from dropping Brother at soccer practice, Mom had a sudden realization which she announced out loud. "It's October! It's breast cancer awareness month! I need to do a breast exam!" Mom then proceeded to lift up her arm and conduct her breast exam right there on the busy Highway 491! Once she had thoroughly examined herself (which actually took a while, two red lights), she announced that she's always been a little lumpy, and didn't think she found anything out of the ordinary. I was able to learn from careful observation, that you should not conduct breast exams and drive. Don't get me wrong though, Mom drove great! It was the other drivers that were having trouble keeping their eyes on the road.

Thursday, October 8, 2009

Bloody Platelets!

Hi Ya Reader!

It is 4:30am right now as I'm typing this. I woke up at about 3 and at 3:30 I started reading The Meanest Mom which I continued to do until I had to go to the bathroom. I thought I would be more sleepy after I went, but I still feel quite awake.

Yesterday, Wednesday, I went to clinic. I have had these bruises on my thighs for about a week or week and a half now and they were getting worse. So, Tuesday we called Patch and told her and she told us to come to clinic to get my counts checked. These bruises are kind of strange for me because they actually hurt when I touch or press on them. I usually only sport decorative bruises, they don't hurt or bother me, they are just there for looks.

Patch told us that she wasn't the doctor on call and that House would be our doctor.

House is named after Dr. House from the show "House". Both characters are always right and know that they know EVERYTHING and you don't know anything, and they are right and you are wrong. No question. House is getting better though, he's come to the fact that I "don't follow the rules". Usually when he explains something, the words he uses are words that are supposed to make you feel like you did something wrong. I don't know if he does this on purpose or not, but that is just the way he is. Patch just tells me that I "write my own text book". Patch always words things so that you never feel like it is your fault, unless she is teasing you, or unless it really is your fault.

Anyway, the bruises on my right thigh are fairly large. I've had larger, but that's not saying much. They are about the size of a Piggy paw, or goat hoof, or a 2-4 year old child foot. There are two of them, one bigger than the other, and they are conjoined. They are light purple on the outside and change to red as you get towards the center, and appear to be spreading out on my leg. One bruise has a little "rock" underneath. The 2 visible bruises on my left thigh are smaller and greenish in color. They are about the dime or nickel sized and more circular with no "rocks".

I de-accessed myself at home before we left for clinic so I could take a nice, needless shower and as soon as I took the needle out of the port in my chest blood literally shot out of me! I still had my pajamas on. I pulled my T-Shirt away from my body so that I wouldn't get blood on it, I was unsuccessful. Good thing I don't wear tight clothes much. The blood had stopped shooting out of me by now and was pouring out from my little needle hole instead. I grabbed a tissue (the first thing I saw), put it on the hole as fast as I could, and applied pressure. My blood had already dripped down my stomach and onto my shorts. There was blood on my foot and the floor as well. My fingers also had blood on them. I was a bloody mess!

I cleaned up the blood off the floor and dabbed the blood off my foot and I went to show and tell Mom. She was on the lanai on the phone with some lady who works for AT&T trying to figure out why she couldn't send text messages anymore. Baby was with her. I told Mom about my blood fountain, she looked at me and I think heard most of what I said, but was still on the phone. I checked my hole to see if it had stopped bleeding and it had. So then I showed Mom my blood soiled tissue, just to make sure she fully understood what had happened. She said, "Oh that's not good." as Baby (the little family baby dog or rather babied dog) came to lick some of the blood off my foot. Right after that I went to the shower and then we were off to clinic.

When we got to clinic Agent 99 (my clinic nurse) sucked my blood and sent it to the lab. Mom and I were expecting low platelets with my bruises and bleeding. Agent 99 and Mom were supper insistent on ordering lunch for me. I have to be on the "low microbial diet" until I get an immune system, so I can't eat just anywhere. Agent 99 can order food for me from the hospital when I'm at clinic. I eventually gave in and ordered a peanut butter and jelly sandwich and two bananas. I don't really eat meatless sandwiches, but I wasn't really hungry anyway.

We learned that my platelets were 104, which is a low some-thing-to-be-worried-about number for a normal person, but a pretty decent number for me. We were both surprised and pleased.

A little while after that, House came. He looked me over, told me he got a new puppy. Declared me good looking, and made an appointment for me for next week.

Eeep! I just looked at the battery and I haven't got much time left! I got to close this supper fast.....

My creatinine (kidney function number) was up to 2.8 again, which is not good. I'm going to have to drink a lot to try to get it back down.

My dad just woke up, it is 5:37 now. He wakes up early everyday to feed the chickens and go to work and what not.

Ummm, I can't think of much else that has happened. I need to work in school a bit. My grades are wonderfully beautiful, as always, but I'm a bit behind in some classes. So, that is part of the reason I haven't been blogging very much. I'm grounding myself off of certain communications and toys.

Thanks for reading, and if you are praying for me, thank you for those too! They are much appreciated!
Your, Miss E.

Sunday, October 4, 2009

How Jupiter Got His Name, and Radio

My dear, Reader,

It has been a little while since I've last written, but have no fear! I shall get you up to speed with what's been happening!

Last time I wrote was Wednesday, which means that the day after that was one of my social outing days! Thursday Brother had soccer practice and I took Piggy with to further her therapy dog training. She is doing very well. I'm quite proud of my little big Piggy. I took some pictures with my cell phone so I could show you how she looks when she's "on duty". However, I'm very sorry to say that I can't get them on the computer! See, I have this little memory card, and I put it in to the computer and it said it needed to be finalized. Then, it tells me that it will delete everything on the card when I finalize it. So, I move the pictures to the phone memory, and I try to finalize it. It doesn't work. I put the card back in the phone and try to finalize it though the phone, it seems to work. I put it back in the computer, it doesn't work. It just keeps telling me "Windows can not finalize...." So, I'm going to have to talk to the cell phone guys and see if they can fix it.

Anyway, Piggy is doing famously with her training! She's pretty much my shadow unless I tell her not to be. She is getting to be very attentive. She can even go leash-less. I told her to "STAY" at a corner of the bathroom building and I walked around it (out of her sight) and appeared at the other side and she was in the exact same position as I had left her. She didn't even come when she saw me, she waited until I gave the command. What a good girl! She's started to ask me permission before she greets people, she really wants to say hi to EVERYONE but she seems to understand that not everyone wants her to say hi to them. Yes, I'm quite proud of my precious Pig.

The day after soccer practice was Friday. Rosetta Stone, my home-bound teacher, came and did school with me that day. She brought me the book "To Kill A Mocking Bird" which I started today. She also gave me some geography homework and some vocabulary. She is coming back tomorrow, because I have clinic this Friday. Me and Rosetta always finish our school sessions with a sudoku battle. She beat me this time, again. I'll get her though, the lovely Rosetta Stone will be reduced to grains of sand by the time I'm done with her!

Saturday, was a work day. The boys (being Dad and Brother) went and did yard work at the rental houses that my parents own. Mom did work everywhere around the house, I can't even count all the places, and she also helped me with my room. My aunt and uncle are coming to visit for my birthday and Brother and my rooms are horrible messes. I switched rooms with Brother for his birthday, as he had always wanted my room, and they still aren't quite straightened out. When the boys got home, Brother did school work, and Dad played with his chickens outside.

Then, Saturday night, Brother's friend, Jupiter came over and spent the night. Jupiter is named after the planet, the gas giant. Jupiter is very tall, and is has super natural wind-making abilities. He can produce wind so toxic it could kill a small child. He towers over everyone in my family in height, and he can eat a lot. Once we got a "monster" pizza that was 28 inches in diameter and he ate 1/3 of it all by himself in one sitting. When he comes over he is family, he calls my parents mom and dad, they call him son, and I treat him as my brother. We even took him with to be on a telethon with us once and and I introduced him to the TV guy as my brother. Jupiter is super tall, with wavy/curly blonde hair and blue eyes. He doesn't look anything like Brother and I who are half white and half Asian. The TV guy didn't question it though, and Jupiter was introduced to the state of Florida as one of "Miss's brothers".

Today Brother had a soccer tournament in Tampa Bay. So Mom, Jupiter and Brother left the house at 9 so they could get there by the time the game started. I think we live about two hours from the Tampa field.

While they are at the game, I've been at home and busy being fabulous. I did some school work, and then I went on the radio. Really I did! I was on the radio today to talk about my bone marrow transplant. It was on a radio show called "Focus on Females Radio Health Care Clinic" and it was bone marrow transplant day. The host guy called me up on the phone and I was a guest with Patch. It was all educational, the host man didn't seem to really want to make things fun. That's not usually the way I roll, but it was fine. I was fabulous anyway!

That's about it for today. Brother, Jupiter, and Mom are expected to come home around 8pm as Brother's last game ends at 6. I'm quite looking forward to tonight. Daddy is going to make me his chicken soup. He hasn't gone out and killed the chicken yet, but he sure to sometime soon. That chicken soup always hits the spot, and chickens from the yard taste different than chickens from the store. Store chickens just don't belong in Daddy's chicken soup.

I'm going to go and do more school work, I owe all my teachers except my driver's ed teacher. I've been working really hard in her class so I can get my learner's permit by my birthday which is only 37 days away! I'm so excited!

Hope you have a great Sunday!
Miss E.