Thursday, September 16, 2010
I know I have been neglecting my blog a lot lately, but I am alive. I thought you might be interested in knowing that. I am a bit behind pace in school, so much of my time spent on the computer is spent doing that.
So, I am alive and doing pretty good. I hope you have a blessed day!
Sunday, August 15, 2010
I thought I would write about some things I really like today. However, that would take really long, and I would want to write too much, and it just won't turn out right, which might make me stress out. Stress (as you probably know) can cause hair loss, weight gain, change in hair color (gray hairs), an increase in blood pressure and heart beat, quick changes in mood or behavior, nausea/vomiting, diarrhea, constipation, head-aches, swollen feet, the formation of disgusting oozing pustules, and more.
Okay, maybe I exaggerated on some of those, but why take the risk?
So, instead of writing about some things I like, I'm going to pick 1.
I pick Brother.
Brother has black hair that is as straight as a straight pin, and probably has the same circumference. His eyelashes are so full that unless you examined him closely (or you knew him) you could easily think him to be wearing "guy liner". He is the most toned guy I have noticed his age, and he also looks the most manly. That isn't why I like him though.
Brother is a good brother.
He is protective. Granted he isn't like a "girl flick movie protective", but he does protect me, even if he doesn't always want me to know it or realize it. I think he's probably the most nervous about me getting out of isolation, because he sees what an utter dork I am at home and worries I may act that way in public. Which I may be prone to do, especially if he is present. He stays away from sick people at school because he knows that if he caught the right kind of sick, I will surely perish. He (and Dad) do the yard work because he knows that I (and my mother much of the time) deteriorate in the heat. He does more protective stuff too, but this is not a post on his protectiveness, and 3 examples is good for a paragraph.
He is trustworthy. If you tell him a secret he will not repeat it. I can do that too, but it seems to be harder for me. I think this is for two reasons A.) I don't get out much, so there is hardly ever anything to talk about B.) I don't understand why people keep "YOU CAN'T TELL ANYONE!" secrets, it makes no sense to me. I think that you could always tell someone, as long as you knew they were a safe person. Brother seems to not care about what anyone tells him for the most part. So, he won't tell people what you tell him because very frankly, what does it matter to other people anyway? He's a "safe" person to talk to.
He is a bunch of other good brother stuff too. He may not be so nice 100% of the time, but he apologizes when he does something uncalled for and hurtful, which mot many people can do. He plays games with me, like chess or gamecube. He's a good listener when you need one, and he tries to understand, and he doesn't judge enough to say he's one who does. He's not stuck on stupid stuff either, he knows there are WAY more important things.
I'm not going to write much more because this post is getting long already. Here are the last few things I would like to mention.
Brother is my friend, I think I am his, though we would probably never be friends if we weren't siblings because we keep different social groups. I love him very much, he is a great brother, and he loves me too, though I can only remember getting an "Okay" on the sister scale. He might have called me good in the sister department once or twice though.
And something that I really like about my whole family:
We aren't weird about things. What I mean by this is, we don't hide from each other or keep secrets (except ones that aren't ours to share) from each other. We don't think our lives are not normal, because to us, they are perfectly normal. What's not normal about them? My mom being bald, barfing every 3 weeks, and me sporting faded bruises like jewelry is normal. If I asked you, "How do you cope with having that gap in your teeth?" What would you think of me?
What gets me, what puts my "Not Normal!" flag up, is when I see families where a member has some a health challenge or sickness and they are all "Ah! We aren't normal! I don't know if I can stand it! When will I/my spouse/my child be normal again!? How can I handle it!?" I mean grow up! You are as normal as the rest of us, your normal is just different, as is everyones'. The thing is, this is your life, this is your normal, so you may as well like it.
Brother and I decided a long time ago. We each have one sibling, only one. We can be friends, we can "get along", or we can choose to do neither of those things. I like our decision.
Sister of a Good Brother, and Member of a Normal Family,
Saturday, August 7, 2010
The message I wanted to get across to other kids (teens) is:
Just look at what you have! This kid, this sweet 15 year old girl hasn't been to school for 6 years! You think that's fine?! You think, "Oh things are always bright and happy for Miss E. She'll be fine." No! That is not true. Miss E. is NOT fine and dandy, her aura is totally not pink right now. How dare you!
How dare you complain about not getting the classes that you want! How dare you complain about your busy schedule! Is your heart blind?! How dare you complain about getting to go school!
Going to school is a privilege.
Having a job is a privilege.
Oh you know do you? If you know that, they why don't you act like it?
Quit thinking about how bad you got it.... That's what I'm trying so hard to do right now. Other people use me to accomplish this, I use other people....
Yesterday, was Prayer's first birthday. Happy birthday, I'm thinking of you, and thank you for helping me.
I got home from Tennessee a while ago. We had a great vacation.
Brother starts school this Monday. I am very happy and excited for him. This is his first year of high school. He is also excited.
I'm a bit bummed out that I can't go to school, again. Virtual School is great - the teachers are all wonderful, the lessons are good quality, you do learn (or I do), but I just have been waiting a long time to go back to a traditional school. In 6 years, I have attended 9 weeks of traditional (i.e. in a classroom, with a teacher and other students) school, and those 9 weeks were great. I remember so much from them, and I am so very happy that I received the gift of going for that long. I even remember from over 6 years ago, from 1st to 3rd grade about school. I always liked it.
I talk about the days when I used to go to school more often than I should. From how I talk sometimes, people might think I was a normal school-going kid. When I hear myself, I always think, "Like you can talk, you haven't been to school in 3 years, and even then you were only there for 9 weeks." So, I always say, "I remember when I went to middle school for that little bit...."
All my life, I have always been one to see "the bright side" of things. At this point in my life, I don't know if that is because that is just the way I am, or if my parents helped me. Its probably both. So, while I can't help seeing the bright side of not getting to go to school this year, and not going to PIBS at all ever (because you can't start into the pre-IB program in the middle of the year), I see "the dark side" too. I don't like it either, it makes my heart heavy in my chest.
So here is my bright side: Even if I could go right now, I am way too tired. I would never make it. It is actually good that my T-Cells aren't there right now, because it would be way more awful to have the immune system but not be able to go because I'm too out of shape and tired, than to not be able to go because I don't have the immunity.
Bright side to no PIBS: If I do start in the middle of the year, I won't have as much homework. I can still be in the IB program next year.
The thing with the dark-side is, it is all sooo selfish when I say it. "I am sad that I don't get to go to school, because I want to go and I haven't been able to go in almost 6 years. I want to go so bad, and I don't get to." See how that sounds? Icky!
At least I'm getting off some meds, and hopefully that means I'm getting better. I haven't been to the hospital this year, so that is good.
So anyway, I'm trying not to be selfish about this. I can't always get what I want, and I just have to deal with it. I'm still very excited for Brother, and I hope he enjoys his first day very much.
Thursday, July 22, 2010
I am on vacation! I am visiting the famous Hills of Tennessee, as mentioned in the song, "Proud to be an American." My great-aunt and uncle live here and I am visiting them along with my Mom, Grannee, and Brother. Today I am at home while Brother and my aunt go zip-lining, and my Mom watches.
It is really nice and relaxing here. I took pictures of the place and tried to upload them here, but I messed it up. So, I'll probably try that again some other time.
Today something exciting happened!
A wild animal escaped into the house! The monster came from the vast unknown through the garage (supposedly) and darted at top speed into the house. My uncle shouted and I said, "Are you serious?" He assured me he was and told me the creature had taken cover in Grannee's room.
I entered the room following my uncle, and there was no creature to be found. Then all of the sudden, a rustling in the curtain, and I saw it. It came at me, and I stood perfectly still until it passed me in the hallway. Then, me and my uncle chased it down fearlessly. He had a net to assist him, while I was left to fight the savage beast with my bare hands. Grannee just watched it from the sidelines, probably paralyzed with fear.
I got it corned in the laundry room and my uncle came. "Where is it?" he said in his deep voice, "Its over there." I said gesturing to the corner. I had already opened the garage door so the thing could get out. My uncle went over it, talking to it (calling it "stupid"), using his net to herd it out into the garage. Then, it was out. We were saved!
So, my uncle opened up both garage doors so the cute sweet darling little wren could go back outside.
Tuesday, July 6, 2010
As usual, a whole lot has happened since I wrote last. I will conveniently list the latest events below, as this seems to be a very efficient way to quickly update...
Note: Events are in order of memory at the time of writing.
1. I made great chicken and dumplings last night! I am very hungry right now, sorry.
Wednesday, June 16, 2010
I know I'm not supposed to be posting (I still have to finish virtual school) but I have 2 things to tell you, okay 4, but I've really got to do homework right now so I'm going to make this very brief.
Thing #1 (medical)
I went to clinic 9 days ago, and I didn't tell you about it. It was great! My BK Virus number (BK Virus is the virus that is trying to kill my kidney) went down to the lowest it has ever been since we started to really worry about it! It is in the 50,000s!!! For me, this is big YAY! news.
Thing #2 (medical)
I went to clinic 9 days ago, and it was great further! My kidney function number went down too! Yay! This is great news, it was down to 2.48!!! For me this is very good, as my doctors were thinking it would never be able to go down past 2.6 due to the excessive damage caused by the BK virus.
Thing #3 (kind of medical but not really)
I went to Wal*Mart 2 days ago!!! I haven't been there since before transplant and it was a big deal for me. They had totally re-done the place since the last time I had been in. There wasn't many people there either so I didn't even wear a mask! Soooo exciting!!! I didn't touch anything really, except the cart which Mom wiped with a clorox clean-up. I was cart-pusher for Mom. It was AWESOME!
I made a video for my biology class. I wasn't going to post it on here, but my biology teacher thought it was awesome! He even gave me extra credit!!! He says it is the best assignment he has ever gotten for that lesson and he asked me if he could put it on the announcement page for the class! What an honor! So, I told him that he may. I thought you might like to see this amazing video, so here you are:
P.S. Do you like my new blog look? Leave a comment and tell me please.
Also, thing #5: I am finished with all my assignments in Geometry now!
Sunday, June 6, 2010
My time on the telethon is now over. It was very fun. There is so much energy in that atmosphere and it is bounced around and recycled. Going to the telethon actually seemed to give me more energy.
I was disappointed Saturday because I was going to go on live, and my bone marrow donor was going to try and watch me via the All Children's Hosptial Telethon website. I kept thinking to myself all day long before I went on, "Talk slowly, say each word, and give a shout out." My donor isn't very fluent in American English yet. As soon as I went up there and got on stage with the lights and cameras in my face, I just forgot everything! Poof!
Maybe, if I get invited back to the telethon next year, I can have a pre-recorded segment too so I can say what I want. I wanted to encourage people to consider donating more than money.
Anyway, I have lots of pictures from then that I stole off of flicker. Here is one of me, Brother, and Resi when I appeared live at 8:42pm on Saturday.
Thursday, May 27, 2010
I know I haven't posted in a long time, and this isn't really going to be a post post, most like an announcement. I won't be doing real posts until I get my school work done, sorry.
I am going to be on the All Children's Hospital Telethon! I will be appearing Saturday, June 5th at 8:42pm St. Petersburg, FL, U.S.A time. You can watch me live at that time at www.allkids.org/telethon. If you are international and want to watch, there is a list of world clocks here where you can see how your time zone compares to mine, and do the math.
I can do a back bend! I just did it maybe half an hour ago. I haven't been able to do one in years, and I was so happy that I cried. Mom was very thankful that I cried because she has been really emotional/hormonal/not herself lately and has been experiencing mood swings.
Other announcements that aren't as important, but I should probably mention before they get too far out dated:
1. (This actually has happened since before last time I posted, but I didn't have time to write about it) Brother has a girlfriend! You can find a picture of her HERE. She is the blond girl next to the Asian girl (Sleeping Beauty, if you know her) on the far left. Brother has his arm around her in the picture.
2. I learned how to light the grill! I can now complete this dangerous task all by myself without any human supervision!
3. Brother caught his hair on fire, because he thought he already knew how to light the grill! He did loose some of it, and had a tiny burn above his lip. His hair has since grown out and been re-cut.
4. My dad killed one of the foxes that has been hunting his chickens. Don't worry. I looked it up, and it is perfectly legal since we live in a rural area.
Foxes are not afforded protection from humane control measures. However the law does prevent the use of poisons or illegal traps or snares to control foxes, and it is illegal to shoot them in urban areas including parks.
5. I got in my first car accident! Kind of. I was pulling the old van out of the drive way and it had the trailer attached. I miss-judged, or didn't look in my mirrors well enough or something, and when I gave it gas (the old van has a kick) it ripped up the gate. I was very worried that my dad would be very mad, so I made him fresh rice for when he got home.
6. Everything was fine because Dad didn't notice that the gate was torn to pieces. He only noticed that Mom had backed up the van into his big garage and made a crack in the trunk. Pictures available later. He noticed the gate after Mom told on me. Dad said that she should have been watching me better, I have no experience driving. I, sensing her immaturity, explained the situation to her saying, "You are in trouble and I am not." in a sing-song voice with a smile on my face.
7. Mom and I shaved the two hairy border collies for the summer. One of them, who I believe has the code-name "Clown" has a Mohawk down his back and tail because of this. People drive by our house to stop and laugh at him. His life is now fulfilled.
8. I started violin lessons.
9. This Friday is Brother's last day of school!
Okay, that I all I can think of for now. Thank you and have a nice day!
Love, Miss E.
Saturday, May 8, 2010
Thursday, April 22, 2010
Sunday, April 11, 2010
Thursday, April 8, 2010
Tuesday, April 6, 2010
Friday, March 26, 2010
Wednesday, March 24, 2010
Attached is the official letter concerning your status in PIBS for next year.Yes, you were accepted. However, there is one small provision to your acceptance for next year. Because PIBS and IB students have to attend school (there are some IB assessments that are given in an interactive group setting), the Application Committee has requested that you have a doctors approval releasing you to attend Lecanto High School full time. Because PIBS and IB teachers need specific training, it is not possible to do PIBS or IB on a homebound status.
Saturday, March 20, 2010
Monday, March 15, 2010
Dear PIBS Applicant for the Class of 2014:It is with pleasure that we can inform you that you have been accepted into the PIBS class of 2014 at High School.
Dear Applicants:We had more applicants for the 9th grade class than we had expected.Therefore, we have only just finished our evaluations of those students and will begin the evaluations for the 10th graders starting tomorrow.I regret to inform you that we will not be able to notify you of your status in 10th grade PIBS at High School UNTIL next Monday at the earliest.
Saturday, March 13, 2010
The Florida Comprehensive Assessment Test® (FCAT) is part of Florida’s overall plan to increase student achievement by implementing higher standards. The FCAT, administered to students in Grades 3-11, consists of criterion-referenced tests(CRT) in mathematics, reading, science, and writing, which measure student progress toward meeting the Sunshine State Standards (SSS) benchmarks.
Wednesday, March 3, 2010
Tuesday, March 2, 2010
metastasize |məˈtastəˌsīz|verb [ intrans. ] Medicine(of a cancer) spread to other sites in the body by metastasis : cancers that metastasize to the brain.
metastasis |məˈtastəsəs|noun ( pl. -ses |-ˌsēz|) Medicinethe development of secondary malignant growths at a distance from a primary site of cancer.
Monday, March 1, 2010
Saturday, February 27, 2010
Starting a new school or a new program like PIBS can present challenges to anyone. Please answer the following questions to the best of your ability.
What challenges do you foresee if you are accepted as a PIBS student; what strengths do you have to meet these challenges; and what will you as a person be able to add to Lecanto High School and the PIBS program.
I read this prompt and thought it sounded easy. However, I'm having a lot of trouble with it. I didn't want to tell you because I want you to treat me like you would any other student, but I've been out of school for about 6 years because of cancer, a bone marrow transplant, and related complications. High school only exists in my imagination. I would have just as much luck answering questions about the challenges of going to high school as a high school student would answering questions about the challenges of having cancer. Nevertheless, I'll try to answer your questions to the best of my ability.
If I am accepted as a PIBS student, I either see no challenges or so many challenges that I literally burst into tears. I know nothing about school or what the challenges could be, anything could happen. I am a bit worried about getting around, navigation and contact with persons and objects specifically. Though I'm trying to get on a normal schedule and am doing different physical activity to build my strength and endurance, I'm not in great physical shape and taking the stairs might really exhaust me. The kids behind me may trample me because I'm going too slow. If I bump into people, get shoved, or walk into a door, table, chair, or desk, I'm sure to get a big black bruise because I have low platelets. What will happen if I get too many?
Then there is the intensity of the program. Right now I know I'm not doing as much school work as the PIBS students are. If I get accepted, I expect I'll be behind my classmates a bit. I'm working towards getting my PE credit online, and plan to start Spanish upon acceptance to PIBS to help catch up. I do mostly virtual school classes which take a lot of discipline and hard work, but I don't know how much I can handle. I want to enjoy being a high schooler, but what if the PIBS program is too much?
If I do get to go to school, and if I am accepted to PIBS, I'll probably have to go to the bathroom to cry between every class because I'll be so happy. The challenges don't matter to me. I'll take them. If I'm teased, or bruised, or a bit behind, or a slow-poke on the stairs, or if I have to work really hard, it will all be for the better. I'll do it all happily because I want to go so badly. I'll try to be as careful as I can to avoid getting bruises. If I am behind and have to catch up, I'll do it. I've done it many times before and I can do it again. Whatever I have to do, I will get it done. If I get overwhelmed I will ask for help, and I will listen. My discipline, dedication, strength and perseverance will enable me to succeed in my intentions of flattering the success rate of the PIBS program. I will not fail or disappoint you or me. Going to school and being in PIBS means too much to me to waste, it would be a fantasy brought to life.
Thursday, February 25, 2010
The International Baccalaureate program of studies aims to develop students who are Inquirers, Knowledgeable, Thinkers, Communicators, Principled, Caring, Open-Minded, Risk-Takers, Balanced, Reflective.
Considering the above, write the best essay that you can that expresses which of the above traits are your strengths and which are your weaknesses.
IP Learner Profile: My Strengths, My Weaknesses
Here's just another essay to critique. What makes this one unique? That's right, nothing! I am very much like all of your other high profile applicants. I excel at being open-minded and inquiring. However I'm not a caring person, nor am I well principled.
To begin with, open-mindedness is my greatest strength. You may have guessed this from my introduction. In group work, I tend to be the one with the most ideas, but I also listen to the ideas of my peers. It's not because of my good looks that I'm almost always the first pick to be in a group.
Second is my most piercing weakness; I am not a caring person. In most cases, it's your own fault for the predicament you're in, so why should I go out of my way to help? Once, a classmate asked me to spare him a pencil. In order to administer him a pencil I'd have to discontinue my work and rummage through my binder for him. So instead I say, "Learn the hard way."
Another strength of mine is that Im an inquirer. Remember that saying, "It's curiosity that killed the cat."? I think I very well could be the reincarnation of that cat. In fact, a few days ago I rediscovered a remote control sports car that was once my childhood obsession. My traits of inquiry further provoked me, and I found that after all this time it still worked. Diving deeper, I dismantled what was once the only thing I cared for in order to perceive how it functioned. I swear if I had been born before Newton, I'd have been the one to give gravity a name; probably a cooler one too.
Lastly, I have a weakness in principle. Sometimes I just blatantly slip away from my usual angelic self. There are many instances in class when I complete my word or soak up the lesson too proficiently. With this time to myself I sometimes end up taking a nap, talking, or in the worst cases, throwing paper. Although I believe that in the IB program there will not be time for insubordinate nonsense; nor will it be tolerated.
All in all, this concludes my self assessment. My strengths reside in being open-minded and inquiring. My weaknesses are of being caring and principled. Maybe I'm not like the other applicants after all.